• Anonymous

    Now you’re singing from my well-worn hymnal about women needing to take care of ourselves as well as being advocates for our health.  This use of “mini” when it comes to women’s heart attacks and strokes… do not get me started!  Is there any health incident that occurs to men that’s ever considered mini?  Disparity in delivery of services exists until the bitter end:  end-of-life care is a whole different ball of wax, with black families needing to beg for ordinary measures to be taken. 

    Delighted that you’re persevering.  amazing kept me up to date and solicited shakes of my desiccated chick’bone.  I did so gladly.

    • Anonymous

      Hey Sis!
      I might have to do a diary about end of life care.  My family is considering a lawsuit against the hospice where my father made his transition.
      I thank you and your rattle from the bottom of my heart.

      • Anonymous

        The Black Social Workers have plenty of data.  I heard a rep of them speak about it and she lit a hearing up.  So sorry to hear that the lackadaisical approach affected you in such a deeply personal way.  A friend of mine has a horror story about the care her grandmother received:  she had a DNR, which is pretty straight forward.  By its definition, resuscitation is to bring back, right?  They were screwing up the baseline of her grandmother’s breathing, which was ventilator assisted.  One of her daughters is a nurse and took a look at the chart.  Scary stuff.  The woman responded immediately and lived comfortably for another 6 months, IIRC.

  • Anonymous

    Thank you, Robinswing!

    One of my daughters has been involved in cancer research for almost 15 years.  Her first job was in a project involving early detection for breast cancer and more effective treatment that connected with other researchers world wide.  They were very involved in trying to reach women of  color who were being way under served for early detection.  The odious Bush cut off their government funding so they also lost their matching grant money and had to fold.  Daughter cried over this but moved on to an urban research hospital.

    Her advice to anyone diagnosed with cancer is not to give up or give in to the Docs but to do the research on current treatment yourself (which she says is easy to find online because it’s being published there by lots of people in the field.)   Be willing to fight, push back, take charge of your own health and tell the Docs what YOU want.

    Also got a small lol about your “lose weight” comment.  I was told by someone years ago to say “I’m donating or giving my extra weight to someone who needs it more.”   ♥  

    • Anonymous

      Thank your daughter for me.  Thank you too. 

  • Anonymous

    Thanks for being open about your experience with a cancer diagnosis. This will be helpful to a lot of us reading this, and we can pass some useful advice on to others.

    We should all inform ourselves as much as possible, and then expect nothing less than straight answers from our doctors. If a doctor can’t deal with this, it’s time to get another doctor.

    Happy that you are back writing on a regular basis. Happy that Seeta got this place up and running so well.

    blindyone

    • Anonymous

      Hey Sis!
      One of the personal things that happened for me through this experience comes down to being more open. I had to learn to accept help and to ask for it when it wasn’t volunteered. This was extremely difficult for someone like me who took a ‘big girl’ pill a long time ago.

      Initially I volunteered with my oncologist to come once a week (once I can) and run errands and help his chemo patients.  He asked me instead to counsel them telling me I had the best attitude he had ever seen.  So in a real way this is me doing that work until the neuropathy (chemo backlash) allows me more mobility.

      I too, am thrilled with this site. Thanks for your support.

  • Robert

    Thank you for this important piece Lady Robinswing.  It is far past time that we start arming ourselves with information and empower ourselves when it comes to our bodies.  Without going too deeply into my personal information, I can say for a fact that we aren’t having the conversations we need to with our doctors and I do believe that many medical professionals have allowed a more insidious form of racism affect our quality of health and ultimately the quality of our lives and lifespans.  Of course, these same professionals are all too happy to read the latest medical journal that point out these disparities, while doing fuck all to take themselves out of the “Part Of The Problem” column.

    • Anonymous

      I’m not sure that  a lot of doctors even bother reading. My father’s best friend was a physician who while he lived basically passed out sugar pills to his patients.  He died of a heart attack almost forty years ago but he had very little interest in his patients. he was all about the benjamins.

      • Robert

        I think for many, it depends.  Certainly for most oncologists and those more involved in research, to stay abreast of the work going on in their field is necessary “window dressing” at the very least.  I do agree that physicians have the ability to get lazy when you start to look at GP’s and others and the focus on billable hours instead of quality of care.

        Edit: That is not to say that many who do have information available with regards to PoC don’t actually ignore the stats, because they do.

        • Anonymous

          You are right. My father’s friend was indeed a GP and one of my dearest friends is a specialist who takes period exams as part of maintaining his status in his specialty.
          What my doctor said when he spoke about it suggests that many doctors because their own ingrained biases don’t regard POC in the same ways that they do their ‘white’ patients.

  • Anonymous

    This is so ON POINT! Women In general have difficulty speaking up for ourselves – perhaps it’s generational in nature. I’m 52 but I’ve learned to make a list of questions, research on the web highway, and don’t accept an answer if you don’t understand.

    As a Black woman, I tend to be even more hyper sensitive to this in all areas of my medical and dental needs. I say dental because I have has lots of issues with my teeth that is generational in nature. So, I’ve had really shitty service – unnecessary procedures, etc in the past. In the past because I don’t put up with it now.

    Also, we tend to poo poo our pains – I’ll just take an aspirin or I’m just tired. We are conditioned to just put up with ills because we are not ‘miss ann’ and we have things to do. No, no, no, no!! We are somebody!

    Keep up keeping on, Sistah! Sorry about the cancer and I’m praying for a good outcome

    Ask

    • Anonymous

      Cancer gone.  Very aggressive treatment. My son talked with the number one oncologist in the country would said this is the treatment he would have recommended as well. Turns out my doctor knew him and is one of those physicians who keeps abreast of what’s happening in his field. Lots of doctors don’t.

    • Anonymous

      No need to explain dental:  the mouth is the gateway to good health.  Too many folks don’t take care of their teeth or heed the warning signs that something is wrong.  I was a Head Start kid and dental care was part of the array of health services, thank goodness.

  • Anonymous

    A pause for the cause…back shortly.

  • Anonymous

    Robinswing

    thank you for your powerful testimony….I will be sharing this post with family and friends.  Praying for your continued recovery,

    • Anonymous

      Good to see you here Foufou.  Hope it helps somebody in your family.

  • Anonymous

    I could do another diary about the signs that you are in the wrong
    doctors office. But basically my philosophy boils down to this

    Whether a doctor,plumber,electrician or lawyer, they are hired help. We
    may pay more to compensate for the skills acquired through education
    but they are hired to help. Their time is not more valuable than mine
    since I am the one paying. They do not get to speak to me from the mount
    as it were. I will not allow myself to be rushed,hurried or unheard by
    people I am paying to help me.

    I was seriously blessed and supported through this experience. The
    person known online as amazinggrace flew in twice to cook and clean and
    organize a small kitchen for me upstairs. She also vacuum sealed
    everything from her gumbo to pot roast and put them in individual vacuum
    sealed packages so that the microwave would provide me with delicious
    home style food for those times when eating was possible. Greater love
    hath no person than to lay aside their lives for a time to help another.

  • Hi Robin.  Wonderful piece!  Thank you for the wake-up call and information.

    • Anonymous

      Girl I am still digging on the piece you wrote yesterday and waiting for the next installment.

      • Well, let me tell you…I’m on fire…my next few pieces…well…one piece is one I’ve already posted elsewhere…but the new information I’ve unconvered…It’s about to get real deep…lol

        • I agree that you are en fuego!!  Somebody call 911. 

          BIDOC – lmao

          Good to see you princss!

  • Anonymous

    Tearing up as I write this because you know I would not have been able to make it without your support,love and care giving. The book I’m writing is alot about what real friendships between sistahs looks like…Peaches Brown!

    • more power to you Robinswing

      and much love always

      thank  you

      • Anonymous

        Sis Nancy
        If you would post Shorty Long’s Function at the Junction.  It is the one song that when I hear it I always want to dance.
        Many blessings and much love backatcha!

    • Amazinggrace1

      I love Peaches Brown! It has a warmth & compassion to it. It was my pleasure, I consider it all a labor of love.

      • Anonymous

        Heavy on the labor and even heavier on the love., Peaches.

  • Anonymous

    I hate cancer.  ALL of the ladies in my Sweeties family passed away from breast cancer.  I think when I heard about the free mamograms in the health care act was when it began to double dog piss me off that anyone was talking about killing it.  Thank you for sharing your testimony.  I’m putting it up on the Facebook wall for the ladies in my life to see.

    • Anonymous

      Way too many of us leave this planet too early because of the “C” word.  Thanks for posting on your FB wall.  Hope it helps somebody.

      • Anonymous

        Have you considered opening up a Peoples Porch, at the Peoples View?  Oh, do you want to see a trippy video I found?  send me an e-mail adept2u@yahoo.com

        • Anonymous

          Just trying to get the wires straight with Deaniac.

          • Anonymous

            Send e-mail,  I’m curious if you knew this.

          • Anonymous

            I am not surprised. At all.

  • Kay W

    Good morning, Robinswing.  I am forwarding a link to your post  far and wide – and telling many about how to follow your posts regularly.

    Thank you for this diary:  necessary, clarion, powerful.

    Structural, institutionalized racism in health care is lethal – and it is evil.  As someone else I admire greatly always says, “Tell the truth and shame the devil.”

    • Kay W

      And thank heavens you are doing well.  You are always in my heart, thoughts, prayers, meditations. 

      • Anonymous

        Thanks you for your thoughts and for your support. Both are deeply appreciated.

    • Anonymous

      It is in fact “murder most foul.”

  • Amazinggrace1

    Great commentary my Sister. Every day with you in my life has been a gift. I thanks God for the quality of treatment you received.

    • Good morning AmazingGrace! So happy to see you here, one my biggest and most fave sheroes! :-)

      • Amazinggrace1

        Hey there beautiful Seeta, I’m honored.

    • Anonymous

      I thought I had replied to you upthread Peaches. LOL

    • Good morning, AG!  I’ve heard tell that you’ve a gumbo recipe.  Well, I’m wondering if you might be willing to hook a sistah up with the recipe.  Pretty please!

      • Amazinggrace1

        No problem princss, I need an email to send it to.

  • Anonymous

    Good Morning Sistahs
    Hope all y’all are taking care of the Business of taking care of yourselves.

    • Good morning sis Wing! This is a truly powerful piece.  Too many of us neglect our own bodies and health, notwithstanding the daily besiege of stressors and yes, “Institutionalized racism.” 

      I am actually surprised that the doctor explained the discrepancy between the black and white women so honestly.  Where can I find a doctor like that?

      My own mother is always harping on me to do annual check-ups and the like.  I dislike doctors — but you are absolutely correct that we need to be more vigilant and proactive in seeking quality health care from medical professionals who understand things like institutionalized racism.

      My deepest condolences to you for your enormous losses over the past year and sending you blessings, healing energy for a very difficult year.

      • Anonymous

        Mornins Sistah Seeta
        Thank you again for providing the space for me to post.
        As for your first question “where can I find a doctor like this?”  My answer may sound strange but…in your heart.  Stay clear about who you are and what you want out of any given situation and my experience has taught me that you will touch paths with the right whatever it is you need. 

        I live in a town of 2500 people. We do not have a police department. Most of my neighbors do not even lock their doors.  There are 7 black people in this town (including me).  If I could find my oncologist here, we can find what we are looking for anywhere.

        Though one of my dearest friends is a physician, I did not go to visit and have my health checked.  What I believe is there has to be some middle grown between my previous position (it had been since 1990 when I last saw a doctor) and spending all your time effort and energy visiting doctors offices.

        Thank you for your condolences.  I tell myself that the loss would have been greater if my life had not been touched by these people.

        • Stay clear about who you are and what you want out of any given
          situation and my experience has taught me that you will touch paths with
          the right whatever it is you need.

          What a true and powerful statement.  Thank you so much Robinswing — I will heed your call (and my mother and other loved ones will thank you).

          On a side note, I just whipped up a SistahSpeak page:

          https://criticalmassprogress.com/category/sistahspeak/

          Let me know if you’d like to add any additional text.

          I sent you a message via FB.

          Huge hugs.

          • Anonymous

            Love it…U2

      • Anonymous

        I am actually surprised that the doctor explained the discrepancy
        between the black and white women so honestly.  Where can I find a
        doctor like that?

        Oh…and if he had given me anything but the truth, I would have walked out of his office. That question was my part of the interview.